Jonny Kennedy

Jonny Kennedy (4 November 1966 – 26 September 2003) was a British man who had a rare inherited condition known as dystrophic epidermolysis bullosa (EB or DEB). Kennedy ultimately died of skin cancer, a complication of EB. Kennedy was born in Northumberland, where he spent most of his life. He had a severe form of dystrophic epidermolysis bullosa and was born with no skin on his left leg.In September 2002, Kennedy was diagnosed with terminal cancer and he was given a year to live. He was a Spiritualist who saw death as "a freedom and an escape."He died in 2003 at the age of 36, whilst being filmed for a documentary, on a train returning from a meeting at 10 Downing Street with Cherie Blair.One of Kennedy's favourite bands was Queen; at his funeral, the Queen song "Don't Stop Me Now" was played. His childhood friend Lord Redesdale was in attendance and spoke as per Kennedy's request. He was cremated and his ashes were scattered at the Tenantry Column in Alnwick.